The Early Birth Association (EBA)
The Early Birth Association was formed on the 20th May 1983 with the help and advice of a Consultant Paediatrician who was aware of the need to offer practical help and support to parents going through an extremely difficult time when their babies are in hospital. To this day we are pleased to continue to be there for the families and their babies along with the staff on the units. We are all volunteers and are parents, family and friends of babies that were cared for on the units. We joined The EBA as a way of showing our appreciation for the care our babies received, and to help the families and babies who need the units now and in the future. We are always excited to hear from new supporters and members so please get in touch.
You can find out more about our EBA Committee Members below. We can be contacted through the contact form online, or through the Units.
Heidi Crawford Charity Co-Chair and Unit Rep TMBU
I became involved with the EBA 2 years after my eldest son was treated on TMBU suffering from birth asphyxia. He was given a 50:50 chance of survival and only a 1 in 8 chance of not having any brain damage. It is only due to the incredible team on the unit and the fantastic facilities and equipment available that he is a happy, healthy 9 year old.
My family owes the unit everything and without them we wouldn’t have our brilliant boy which is why I wanted to become involved and give something back. I also wanted to be able to help and support other parents going through a similar nightmare as well as raise awareness and fundraise to enable the unit to continue to treat babies in the best environment with the best resources.”
Michelle Miles Charity Co-Chair and Unit Rep PRH
My name is Michelle and I joined The Early Birth Association committee in 2011 following the birth of my second son Luke in 2010.
Being part of The Early Birth Association has enabled me to help and support parents who are going through the emotional strain of their child being unwell. In 2015 I became a Brighton and Sussex University Hospital Volunteer which enables me to visit the units, run coffee mornings and be a representative of the charity within the Special Care Baby Unit in Haywards Heath. Over the years, not only have I been involved in the EBA but I am also part of The Parent Forum, and have been involved in the Bliss Audit and Development Group as a Parent for the Princess Royal Hospital.
I feel very passionate about what the EBA has done in the past and now accepting the role of being Co-Chairperson enables me, with a brilliant team of committee members, to continue this legacy into the future. We will continue to be able to provide the neonatal units we support with more and more items that is required to help the staff that look after the babies, parents and their families in their care.
Wayne Lawrence Treasurer
My motivation for being involved as a fundraiser and treasurer came from being given a blanket while on the unit. Lewy was born in Eastbourne at 30 weeks in April 2007 after an emergency C section, the Trevor Mann Baby Unit staff took six hours to get him stable enough to transfer. He was suffering from a blood infection, gut infection, low blood pressure and bleeding on the brain.
Lewy’s condition was critical and we were made aware of how crucial the first 24 hours would be, receiving a blood transfusion in the ambulance on route to Brighton. I was allowed to stay in Brighton hospital with Tracy for the first 5 days, with Tracy staying for 11 days. By day 5 Lewy was more stable he was breathing without oxygen, the bleeding on the brain had stopped but was not tolerating his 1ml 4 hourly feeds. I felt fairly comfortable leaving my wife and new baby as the standard of care was exceptional.
Before I left I was given a fleece blanket from Lewy’s incubator to take home, the smell would keep me close to Lewy. It would then be swapped daily so we could be close to each other. It was only after leaving the unit that I found out the blanket that I took home each night was supplied by the Early Birth Association.
On day 8 Lewy was allowed out of the incubator for a cuddle, he was also weighed for the first time, weighing 3lb. Lewy suffered a setback on day 15, developing an infection through a long line, which caused him to stop breathing. He managed to fight the infection and bounce back within a few days, then transferred back to Eastbourne Special Care Baby Unit after 3 weeks.
Lewy’s early start hasn’t affected his development, he now represents his school in Football, Hockey, Swimming, Golf and Cricket. He is also the youngest golfer to record a Hole in One at the Royal Eastbourne golf club, four days before his 7th birthday. None of this would have been possible without the incredible care given by the Consultants, Doctors and Nurses of the TMBU, supported by the EBA.
Jemma Roberts Committee Member & Trustee
My daughter Tilly was born at 24+5 weeks by emergency caesarean in January 2014, after I developed pre-eclampsia. Tilly spent 143 days in the TMBU and SCBU before coming home in June 2014. She spent 6.5 months at home but unfortunately became poorly in January 2015 with a winter virus. Tilly spent the next 10 months in various PICU’s and at the Royal Alexandra Children’s Hospital in Brighton, but sadly passed away in November 2015 after further complications.
I will always be extremely grateful to the staff at the TMBU and SCBU for taking care of Tilly, as well as myself and my Husband Andi. I joined the EBA as a committee member in 2016 as I wanted to be able to give back to the units that looked after Tilly so amazingly well – the huge cost of specialist equipment is often not covered by the NHS, but more than that, the EBA gives the personal touch that a lot of larger charities aren’t able to provide to families. It is an extremely distressing time when you have a baby/babies in the NICU and the EBA aims to help provide a more supportive environment for those parents and guide them through a situation we have been in ourselves. I am very proud to be part of the EBA and what we stand for and hope that the items we provide help ease the difficult times, even if just a little.
Jane Godsmark Committee Member & Trustee
Jane is a Committee Member, a charity Trustee, and mum of Jemma Roberts who is another one of our Committee Members and Trustees. Jane spends a lot of time making beautiful memory bags and laundry bags for the units and ensuring that they are well stocked up with these.
Julie Lester Committee Member, Trustee, Unit Rep TMBU and Website/Facebook Coordinator
I am mum to two miracle children both now at Primary School. I have experienced having both a premature and unwell baby, as my daughter Kaitlynn was born 7 weeks early in 2010 and spent a month in hospital, and then in 2014 my son Samuel was born 4 weeks early and developed a very serious infection that lead to him having meningitis and encephalitis. My nephew also spent time in TMBU in 2012. I have therefore seen the amazing work our local neonatal units do firsthand and spent time in TMBU and Worthing SCBU with my babies. I am forever thankful for all that the units did for us during those very difficult times.
I often think back to the small moments of comfort that I found during those very difficult days, and how important these were to me, my baby and my whole family. When Samuel was fighting for his life in TMBU I met with two representatives from the EBA and spent some time having a much needed cuppa and chatting with Heidi. It was so great to just have another parent to talk to who understood what we were going through. I now volunteer by going to do the TMBU coffee mornings with Heidi and it’s really nice to be able to give something back to the unit in this way.
When Samuel was transported to TMBU, I was also very thankful for a toiletries kit The EBA provided for me, as I arrived at the unit after his emergency transfer without any essentials left for myself. The stock of tea and coffee and biscuits provided by The EBA in the parents’ kitchen was also much appreciated!
I initially joined the EBA as a supporter, helping with fundraising events and supporting projects when I could. As my son’s health needs settled down a bit I wanted to become more involved and joined the committee and am also now a Trustee. I really enjoy being able to work with other EBA members to continue to support the units with the amazing things we are able to do. I especially enjoy helping out in the TMBU Parents Forum by providing parental feedback on research projects on the unit as I can see how these can lead to direct improvements for babies and families on the units in the future. I’m also so pleased we are able to help fund the vital equipment for the units like that which helped to save my son’s life. My husband is a web developer and between us we also work on keeping The EBA website up to date.
Lauren Adams Committee Member and Social Media Coordiantor
Bio coming soon! Lovely Lauren is busy doing our social media!
Charlotte Albrecht Committee Member
I first became aware of the TMBU and The EBA in September 2018, when I went into premature labour with my first baby Hettie, who arrived more than eight weeks early weighing 3lb 8oz.
During the month we spent in hospital we met some of the kindest and most dedicated staff and volunteers who supported me, Hettie and our family through the hardest weeks of my life.After we left the unit we vowed we would do all we could to give back to the TMBU and the EBA,so they can continue to help other families needing their expertise and care.
Fiona Prior Committee Member
I had my daughter Wren in March 2018, 12 weeks early. She was transferred to TMBU at four weeks old in an emergency for life saving treatment and surgery. She was on the unit for 10 weeks.
We spent those 10 weeks living in the Ronald McDonald House as we lived an hour away and therefore allowing me to be on the unit with Wren all day, every day. This meant I got to know the staff and unit very well. They not only saved Wren with such incredible professionalism and compassion, but they also supported me more than I would have ever had expected. I made friendships in such a traumatic environment, with staff and parents, which I continue to value. What the unit does and who they are is truly remarkable and I will be forever grateful.
I wanted to be part of the EBA, to help support a unit that I feel indebted to and help other parents that I feel I can relate to, as well as raising awareness along the way.
Becci Nowicki Committee Member & Unit Rep
Having experienced the early birth of my twins in 2013 I knew early on that I wanted to support other parents going through similar experiences. This has taken some time and now my boys are at school and I have been fortunate enough to discover this wonderful charity. Although my children were born out of the area I know how incredible staff on these units are and how instrumental they are not only in terms of the babies in their care but the parents who have been thrust into a whole other world of parenting.
Reuben and Zeke were unexpectedly born at Queens Hospital in Romford at 26+5 weeks after what had been an uneventful pregnancy when I went into unexplained early labour. Despite efforts’ to stop labour they arrived on the 18th November 2013 weighing 1lb13 and 2lb1 respectively.
Zeke was born first and managed the tiniest cry before he was whisked away to intensive care. His stay was reasonably smooth suffering only a small setback after he caught an infection but he made slow and steady progress before being released after 77 days.
When Reuben was born he was very poorly, needing to be worked on for what felt like an eternity in front of us. He kept us on our toes for the majority of his stay. He needed several blood transfusions, had suspected NEC (thankfully doctors confirmed he didn’t), suffered various infections and struggled with his breathing. Our biggest worry came when we discovered he had developed a grade 3 brain bleed, it was the only time the doctors told us there was nothing they could do and we didn’t know what the outcome might be. Thankfully he has defied all odds and suffered no long term effects from it. Somehow, despite his numerous setbacks we were fortunate enough to bring him home 2 days after his brother after 79 days.
Fast forward to 2019 and the boys have just started year 1 and are almost 6 years old. They are healthy, and very spirited boys who to look at you wouldn’t imagine the enormous battle they faced in those early weeks. I on the other hand am one thankful but exhausted mummy! I constantly remind myself how lucky we are and that the outcome could have easily been very different. We are forever grateful to the nurses and doctors who saved our boys lives, time and time again.
Kirsten Genard Committee Member
Info coming soon
Ryan Watkins Dr Ryan Watkins Consultant, Chief of Service (Women’s and Children’s services) - TMBU Staff Representative
Claire Hunt Committee Member, Trustee and Neonatal Matron - TMBU and PRH
Dawn Fish Committee Member, Neonatal Nurse and Staff Representative for PRH SCBU
Eleanor Turk, Committee Member and Neonatal Nurse TMBU
Info coming soon
Rachel Beston Committee Member and Neonatal Nurse TMBU
Info coming soon
The Early Birth Association are registered on Virgin Money Giving,
where you are able to make a donation directly to us and set up your
own fundraising page for any events that you do.
For further advice and support please also see the useful links and information at the bottom of the website.