News

Story on sunday – Amy Brett

Published 20th March 2022

Story on sunday – Amy Brett

Here is a story from Amy Brett, who quite recently joined our Committee, telling us why she chose to support and volunteer for The EBA.  Thanks for sharing your story with us Amy, and welcome to the committee, we are so glad to have you.

“My little girl was born at 24 weeks and rushed up to TMBU in a special plastic bag to keep her warm. It wasn’t quite the delivery I’d been imagining. And to top it off she came totally unexpectedly during a family holiday. My family and I were left with no where to stay, a tiny baby in intensive care fighting for her life and a 3-year-old wondering where her holiday had gone.

It was the most stressful, emotionally scarring, and terrifying experience of my life. My baby had been given a 50:50 chance of survival and I lived each day wondering if it would be her last. All I could do was to sit and watch and hope and try to hold it together for my 3-year-old. She was acutely affected by the experience too, expressing a constant and overwhelming barrage of extreme rage, grief, panic and confusion.

The EBA was a lifeline for my family during the 6 weeks my baby stayed at TMBU in Brighton. The baby nests and blankets and incubator coverings brightened the ward up, at the same time as making our baby as comfortable as possible. The biscuit barrel in the parents’ kitchen was a source of daily excitement for my 3-year-old and the little library also passed many an hour. I later found out that many pieces of life-saving equipment are also funded by the EBA, as well as a communication platform to help families stay connected with the ward.

I’m honoured to be able to give back to this amazing organisation that did so much for my family and me during an extremely traumatising time.”

To read more from Amy check out her blog https://lifeofapreemiemum.com/
Amy’s daughter Alina also wrote a book about her experience of having her baby sister in the hospital ‘My Very Little Sister and the Very Big Story’ https://www.brettbooks.co.uk.


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